UVLrx – Let there be light!

Whilst I was in California accessing intravenous antibiotics, I also tried various other alternative treatments. One of which was an 8 week course of UVLrx. This is a new cutting edge treatment for infection and virus load and is getting great results for patients with Chronic Lyme. Ideally it would have been more beneficial for…

Part 2… Parasites, Porphyria & Osteopenia

Hello again! Following on from my last post, I continue to update you on the highs and lows of treatment with Lyme disease and its many consequences and complications! Over the course of my stay here, I have had to consult a new doctor at the clinic due to my increasing problems and complications. I…

My Fight For Remission Continues…

It has been 3 months since I arrived in California and began round 2 of magic medicine. I can’t believe I am still here or how quickly time has gone! I had originally booked a return flight for the middle of May, but as time crept up, reality kicked in… I still needed more medicine…

2015 Continues…

February and March continued to be both challenging months: Symptom central and yet more doctors appointments. It also saw the start of my new fundraising campaign for this on-going and madly expensive medical treatment. March brought around my first A&E trip of 2015… I had huge reservations about going, as from previous experiences I know…

On high-alert and feeling toxic! September – November 2014

In my last blog post, I left you with an update as far as August. Things were going fairly well and I was definitely feeling and seeing progress across my body, brain and general well being. This was obviously too good to be true and before I knew it, Wham! I seemed to hit another…

Another Day, Another Hospital… Not quite how it looked on ER!

It has been ten days since I last updated my blog… Why? Well! My body decided that there wasn’t enough drama already in my life and decided to bring a little more to my daily life with Lyme! I would have much preferred a day symptom free, or gluten free, but obviously that was too…